Policy change is hard. Just think about the 2010 Affordable Care Act, its tortuous path toward enactment, and the ongoing debates five years later that swirl around the law and its implementation.
There are many theories for how policy change happens, but one of my favorites is Kingdon’s policy streams model. To simplify a bit, it proposes that a window of opportunity opens when three separate streams come together: a problem gets defined and recognized as such, viable solutions are available, and there is political will to match them up.
Except for the political will part (thank you, partisan gridlock), at first glance this might seem easy. But think about how often your problem is not seen as a problem by others. For years, we faced this challenge when it came to making the case that older adults don’t get the care they should because they have special needs that require specialized, geriatrics-expert knowledge. Because of this challenge and the constantly shifting political landscape, it’s important to have policy solutions at the ready for the time when the problem and politics streams come together.
Jessie Gruman, founding president of the Center for Advancing Health, died on July 14 after a fifth bout with cancer. Jessie was a hero to patients, families, and health care providers for her selfless work to help people better understand their role and responsibilities in supporting their own health.
We swim in an ever expanding ocean of electronic data.
Every Google search or credit card transaction can be aggregated and analyzed by companies that often seem to know what we want before we do. With new and cheaper analytic tools and more sophisticated modeling, the result is the ability to individualize and target, as well as spot broad trends among populations.
In health care, the explosion of electronic health records is adding to the sea of data that already exists from billing and claims. This raises a number of questions, including: Continue reading →
Dr. Julie Bynum moderates the Health Affairs briefing on the special issue on Alzheimer’s disease.
We all have Alzheimer’s disease.
This is a key message I took away from the April special Alzheimer’s issue of Health Affairs, the country’s leading health policy journal. One of the contributing authors, Jason Karlawish, makes this point writing about the ethical challenges inherent in caring for patients losing their cognitive abilities and autonomy. Inevitably, the disease belongs to caregivers and other people in that patient’s life.
My mother passed away recently after suffering from the terrible effects of Alzheimer’s disease for over a decade. About three years ago, I wrote about my experience being with her as she one day suddenly and eloquently expressed her fears and pleaded for understanding. It became clear to me how important it is to listen to people with advanced dementia. We need to show understanding and acknowledgement for who they are, not just who they once were.
These are some of the words of hers that I quoted then:
In health care for older adults (and for everyone really), we know where we want to end up.
It gets articulated in different ways, but generally speaking I think we can all agree we want care for our older loved ones that is coordinated, comprehensive, continuous, and geriatrically expert.
But the path that gets us to that destination is often unclear. To help guide us—the John A. Hartford Foundation and all other stakeholders in the business of health care—we have just funded three grant projects that we hope will shine a light on the way forward.
Patient engagement has been all the rage this week. Health Affairs held a DC briefing for their February issue focused on the topic, highlighting new evidence that patients engaged in their own health care have better health outcomes and can possibly cost the system less.
Our own Amy Berman, a crusader for patient engagement, was on the planning committee for the special issue funded by several of our favorite colleague foundations (she also gave a keynote speech to primary care providers in Massachusetts on this very topic a few days ago).
One of the Health Affairs articles features The Conversation Project, a grassroots national campaign to get more people actively engaged in end-of-life health care choices with their families and loved ones, before a crisis occurs. Health care systems and professionals also have to be “conversation ready.” They must be able and willing to meet the wishes of these activated patients.
Among the authors on the paper is Bruce Leff, principal investigator on the $1.6 million, six-year grant we gave to him and his team at Johns Hopkins in 2005 to disseminate their home hospital program. We thought it was a terrific idea; hospitals can be dangerous for older adults. They often return home from the hospital more frail than they entered as a result of complications like infections, delirium, or medication mix-ups due to poorly managed care transitions. Plus, hospital care is unnecessarily expensive. By admitting older adults who meet certain criteria and have specific illnesses, such as congestive heart failure, chronic obstructive pulmonary disease, pneumonia, and dehydration, among others, Hospital at Home is able to deliver excellent hospital-level care for older patients in the home by providing appropriate equipment as well as daily visits from a doctor and nurse.
Cancer is a leading cause of death in the U.S. and around the world. Nearly two-thirds of those living with cancer are older adults. As policymakers look for ways to provide better care and greater value as a means to bend the cost curve, the nation’s leading health policy journal, Health Affairs, is featuring a themed issue on cancer.
Many aspects of cancer care relate to breakthroughs in science—earlier detection, new medication regimens, and evidence of comparative effectiveness. Yet one aspect of care for the seriously ill is not routine: inclusion of patients and their goals.